Misunderstood

10 things I wish the world knew about our Charlie:

1. Just because Charlie doesn't look you in the eyes when you're talking to him doesn't mean he isn't listening. He hears and remembers every word you are saying, trust me.

2. Charlie is extremely funny, creative, loyal, loving, honest, and unique. You may never see this, though. He hides it very well when he is out in the "big bad world".

3. Charlie deals with so many obstacles on a daily basis: bright light hurts his eyes, loud noises hurt his ears, he can't stand to be cold or to have his head uncovered outside, he tires easily and doesn't have the endurance for sports-type games, he's extremely afraid of dogs and people in costumes, etc. Charlie is sensitive to so many things that most other people wouldn't even notice. He has worked so hard to overcome these obstacles. So hard.

4. Charlie is not simply "lazy", he has hypotonia (low muscle tone) - something he was born with. He tires easily and prefers more sedentary activities because of it. He has been in therapy for this.

5. Yes, Charlie may be clumsy, but this stems from issues with his gross motor skills. Therapy for this, too.

6. Charlie is not simply "picky", he has sensory issues that interfere with his eating. We are working on this, and have been for years. And, yep, more therapy.

7. Charlie is cherished and adored by his family and those who are close enough to get inside his little world. In turn, he is astoundingly loyal to his "people". Charlie's loyalty is one of his greatest and most poignant characteristics.

The way Charlie loves and protects his baby brother is like nothing I have ever seen.

8. Charlie does not understand a lot of the ways that people relate to each other and are "social" with each other. He is often oblivious to social cues and can appear very rude or uninterested. For this, I apologize. It is something we are constantly working on and one of my biggest fears for him is that he will never "get it". Be patient and persistent when you try to interact with him. Once you finally achieve that "connection", you are in and he will love you for life, I promise (see number 7!)

9. Charlie sees the world in such a unique way that every single day I am surprised, delighted, confused, frustrated, enlightened, sad, amused, and inspired by the words that come out of his mouth.

10. Charlie has Aspergers Syndrome.

I constantly find myself caught in this paradox between how completely amazing Charlie is and the need I feel to apologize for the way he is. I haven't known what to do with this. And mostly? I still don't.

All I really know is that Charlie needs to be loved in a unique way. A way that will fit into the grooves of who he is - grooves that follow very different paths and patterns from the world around him. If you take the time to step outside of "normal" and follow him down those paths and find him there and love him there, I promise you won't be disappointed. In fact, you might not want to leave.

Why wine tasting isn't for lightweights...

Drew was working on the big "Homemade Wine Project" with Shawn.

Maybe the fumes got to him?

Milksharing

I have been wanting to write about this for a few days now. But I haven't been able to formulate the words to express my experience: how not only has it provided much needed nutrition and health for Drew, but how deeply it has impacted ME as a person to be blessed so abundantly by the generosity of complete strangers. I have been touched by it in such a deep, personal way that I felt like a "blog post" would never do justice to what has happened. However, I just have to try. So, here goes...

My breast milk supply is very, very low. This happened when Charlie was a baby, and has once again happened with Drew. Now, I had written a whole bunch about how sick Drew has gotten from the formula and how the formula that he was taking is made of mostly corn syrup and "isn't that horrible?" and how he is only healthy when he's on my breast milk which I can't provide him with and how hard I have tried to increase my supply and blah blah blah. But you know what? I deleted it.

Because what I really wanted to say is how incredibly thankful I am for what has happened. For the solution that basically fell into my lap on the very day that Drew was at his sickest, and I was at my most desperate to find a solution for him. For the incredible, amazing, giving, caring women that I have come into contact with over the past few days. So, here's how it went down:

A few days ago, I was reading my friend Rachel's blog. She was writing about something called "World Milksharing Week". Something I had never heard of before. Basically, these women who are nursing and have extra milk they don't need find other women who have babies and, for one reason or another, can't provide enough (or any) of their own breast milk for their babies and, well, they SHARE the milk! Brilliant! I never would have thought that such a thing existed! I was blown away. I immediately commented on Rachel's blog that man do I wish I knew someone who could share some milk with me!? Moments later, I get a text from her saying she can probably hook me up. I texted her back asking how much this whole thing's gonna cost (because I'm thinking this is gonna be spendy...) and she says, "It's free, silly!" What? Not only that, but she's got 50 oz of frozen breast milk in her freezer that she will give me for Drew to have while we try to track down more for him. What?! She also shared with me some links to pages on Facebook where I could find some "donor mommies" and also a website where I can pay a small donation fee and get on their forum to possibly find more milk donors. Which I did. Over the next few days, I came into contact with about 5 or 6 different women, all offering me their milk for Drew. One of whom is a surrogate mom (a beautiful thing all it's own), who is pumping milk for the baby she gave birth to in August, and has extra to share. What an amazing person. Not only did she sacrifice her body, her comfort, her lifestyle, for this little baby, but now she is pumping milk for a full year to provide for him! Wow. She has since contacted me to tell me that as long as I need more milk for Drew, she will share hers with me. Wow. Wow. Wow. I am so struck by this. We now have about 500 ounces of breast milk, from 4 different women, in our freezer to feed our precious little guy.

Drew is feeling SO much better since switching to 100 percent breast milk. He is like a different baby now. Happy, lots of cooing and babbling, sleeping through the night, the diaper rash is gone, along with the puking and the nasty diarrhea! And for that I am beyond grateful. I feel like I want so bad to repay these women. But how do you repay someone for selflessly giving your baby (whom they have never even met!) the very best start in life?

Here is a link to a post that Rachel wrote about our experience.

I really wanted to write more, and I wanted to write it better. But I really need to go to bed before the little tiger wakes up again wanting some of that good milk! So I'm just gonna hit "post" and hope I got the important parts out right. 'Night all. :)

I love finding things like this around the house!

I guess he couldn't find the "R" or the "I".

Cheap Entertainment

For Drew:

And a little something for mommy, too!